Hospice Work
17 Jul 2010
I've been a hospice volunteer for a whole year now- which surprised me the other day when the thought occurred to me. A couple hours a month, a visit every other week or so, and suddenly a year has gone by. It has been interesting, challenging, intimidating, funny, and often sad- but it's also been a collection of experiences that have given back to me as much as I've given to my patients.
I think of Ms. R….I met her as she'd already slid far into the final stages of Altzheimer's. Although she and I shared only a few brief moments together, she made an impression on me. Her family had posted many photos of her and them in better times, and I know she'd been much loved by family, friends and her church- but I met her after most of her sight & much of her hearing was gone and she was locked into a constant fetal position, the smell of a full catheter bag clouding the room. My mind raced that first visit-What in the world can a stranger like me do in a visit with her??? Conversation was impossible….there was no TV, and it wouldn't have held her attention anyway….what to do? Then the thought occurred to me- how hungry a person can become for a simple touch. Not a touch for a purpose (roll over to change the bed; sit up to swallow pills; etc), but a touch for no reason but kindness. So, I spoke softly to Ms. R, and softly brushed my fingertips in slow, lazy circles across her back. She hollered at first, nearly startling me from the room (I felt like I was in trouble), then, as she realized I wasn't giving her a shot or moving her, she relaxed and started to softly, quietly, coo. I was sure she'd lost the power of speech- but then suddenly she sat bolt upright and turned to peer at me, her eyes struggling to focus on mine. "Do you have a car?" She leaned a little closer. "Have you…Do you Have A Car??" "Yes, it's parked outside.", I replied, wondering what she'd say next. "Well then, let's get the h*** outta here!!" It was hard not to laugh as I asked where she wanted to go. "Anywhere! But we just gotta GO! Wait- lemme get my hat…" At which point, Ms. R curled back up on her side and promply fell asleep again. You have to chuckle…. Ms. R passed away shortly after that, and I can't help but think she finally hitched her ride out of that nursing home. Someone told me just the other day that she never let anyone touch her without constant screaming.
I've visited Ms. F for a few months now, and in that time have seen her beginning to decline from terminal breast cancer. She's a strong, proud and interesting "country girl" who often tells of raising fruits and vegetables for market and hauling water and caring for the bird dogs and horses her family kept on the small farm while her mother struggled to raise 7 children alone. Visits usally consist of my interested listening as Ms. F tells childhood tales. Sometimes her mood becomes a little sad in her remembering, so I'll try to deflect her onto another subject. Ms. F seemed about to slip into one of those sad rememberances when her roommate, D, suddenly woke from what appeared to be a sound sleep, leaned toward me and said, "I've been married a few times before and I'm getting ready to do it again." Ms. F & I looked at each other and burst into peals of laughter together. "What do you mean Grammaw, You ain't doin nothing of the kind!", Ms F replied through her laughter. "Yes I am da****! I'm gonna have me that big black fellow first." I was almost in tears, laughing- "What do you mean "first"?! I was certainly curious- To which D replied-" I'm gonna have him first and then that little Asian fellow next and if any of them lasts more than a couple days I'll just have to shoot them- I can't have them hanging around." Evidently she had it all planned out. It's left to the rest of us to figure out what's real and what's medication or illness-induced. Either way, D & Ms. F both seem to enjoy their hallucinations and delusions, often sharing a laugh at perceived frozen turkeys or invisible dogs. Roommates by chance, they're grown to be fond friends. An older, odder Thelma & Louise.
Ms. H lives in another nursing home nearby, in a room by herself that's bright and airy, though it still looks like a nursing home. (There is a Visitor Sign In Sheet at the front desk, and even though there are over 100 patients in the facility, often two or three days will pass with no visitors registered) She is mid-way into her path with Altzheimer's, so she can still form a sentence here and there and can walk, but needs constant assistance. I never got to know her before her illness, of course, but by her constant smile, I think she must have been a joyful person. She enjoys watching TV, but little if any of it actually "registers"- she likes the movement and especially the colors. I watched her watching a cartoon on Disney, mesmerized by the brilliant colors. She's also very fidgetty, with a habit of slapping the chair arm or her leg continually- something that seems to suggest that "antsy feeling" of boredom to me. I'd noticed several dolls in a cabinet, so I got a wild idea and decided to try it out…..I went to the toy section of Walmart to find an activity doll. Something with different textures and bright colors might hold her attention a little and still her hand from slapping- ease the boredom just a little. I found a little doll, with fuzzy fabric and smooth fabric and crinkly paper in places and rattles in others, and in a wild combination of hot pink and orange, with a sweetly painted plastic face. When I first brought it to Ms. H, I didn't give it to her- because her husband was there, and how could you give his dear wife a child's toy, when she had been a mother, a grandmother, a volunteer with the fire station and the love of his life for decades?? I was sure that he would see it as a condescending action on my part. It's one of the truly sad things about Altzheimer's- it renders good, strong people into children again, yet their loved ones often find it impossibly painful to accept that fact. How hard it must be to see your strong, intelligent parent now struggling to follow a Dr. Seuss book! That's one of the biggest values I see in volunteers with these patients- we will read the nursery rhymes and bring the coloring books and laugh at the cartoons with them- when that could be horribly painful for a family member to even consider. Anyway- it was the very best $5 I've spent in my life. It's been a couple months now, and her nurse told me that Ms. H never lets her little doll out of her sight! She talks to it, kisses her little face and holds it constantly, even sleeping with it every night. I can't describe to you how that touches me deep inside.
I hope my few stories haven't been depressing, it's rare that I share them with others because the subject of hospice often turns people off immediately- we all know that there is an end for each of these patients coming soon, and death is a frightening taboo subject. But the point of Hospice is to keep the focus on the Life of the patient. And getting to know these people and finding ways to make even a few moments better is a rewarding experience. Hospice volunteering is quite a challenge, but the rewards are tremendous as well.




When I was shown the craft I'd soon fly in, a long, graceful-looking Blanik with forward-swept wings and a "doublebubble" for two, I was more than happy to help get her downfield. Linked by towrope to a golf cart, the sailplanes each get a "wingwalker" who holds the starboard wingtip level and walks the plane downfield to the takeoff. Expecting it to be quite heavy, I was amazed at how light the incredibly long wing was….and how it seemed anxious to taste every tiny breeze that fluttered by.

Our towplane was a retired cropduster, perfect for the job because of it's quick maneuverability, responsiveness and its ability to fly at much slower speeds than other small crafts- all assets for towing. Suddenly my heart was beating so fast- I wasn't nervous until I slid into that reclining seat and fumbled with the five-point seat harness. Then before I could notice, a wingwalker appeared to my left, first nodding to Peter behind me, then motioning to the towpilot with a circle of his arm….and suddenly he's running with us….and we're bumping along the ground, fast and faster…the swish of the short grass audible above my beating heart. I could feel every bump & divot in the ground below and the thought had just started to form about how thin the plane's skin must be…when, even before the towplane left the ground, our eager little craft was already in the air!!

I will not pull the red thing, I will not pull the red thing, I will not..









"These cantaloupes are sweet enough to knock a billy goat brains out?"
On the left is a Cherokee tomato, a "heritage"variety and non-hybridized, it's an unusual dusky burgundy color, and I'd have a hard time telling when it was ripe on the vine. (That's the covered, built-in cast iron griddle on my ancient stove. When the Realtor showed me this place, he immediately suggested I replace it with a spiffy new stainless steel one- and I think he was more than a little shocked that I loved this stove right off the bat- it's got a little warming oven on the side too- just made for pancakes on a Sunday morning)


You can't really see the sign in this shot I took from the road, but they always announce the day's special, and today it's Fried Green Tomatoes.
"We reserve the right to refuse service to anyone. Regardless of who you think you are!!"







